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I can only guess why I was intentionally and repeatedly excluded from treatment for my genetic condition by a number of healthcare workers at Presbyterian, however, after months and months of my medical needs being ridiculed and mocked, of being terrorized and literally tortured physically by the folks who were obligated (both financially and morally) to take care of me, the best way they could, I have been forcefully driven away from medical care. In fact, I can honestly say, I am currently suffering from untreated complex post traumatic syndrome due to the treatment they have provided me over the course of many years. My only recourse, is to heal myself enough to be able to seek out new care, and to find the words required to adequately describe what is going on, and why I believe it has been happening for a very long time now. I am sharing my journey here, openly, and very honestly, with no other motive than to provide useful information for the people who suffer from this extremely painful genetic condition, as well as provide usable data for the few care providers who are actually interested in caring for these unique and deserving people. In this I also hope the information I provide will inspire others hurt by the greed and incompetence of today's healthcare workers and systems into forming several Class Action Lawsuits in order to sort out this very complex and extremely important problem, so that medical institutions and insurance companies will no longer be able to use chronically ill people as both scapegoat for their incompetence, and as a tool for their greed. You will be able to find more information about the class action lawsuits I believe are necessary in order to create a society where social responsibility does not just fall upon those with the least resources, by clicking my "Class Action" tab. This is where you will find many potential class action lawsuits and why I think they are viable options for US citizens to take back their sovereignty. So long as illness is for profit - we will not see an end to suffering. Kindest Regards, Raena Exe The Storyteller
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My Personal Journey with EDS
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